The Liver & Transplant
PSC is a slowly progressive disease of the bile ducts, followed closely by a hepatologist over many years. It is monitored, its symptoms are treatable, and for advanced disease, transplantation is highly effective. 7,8
Monitoring
Liver blood tests and MRCP imaging track the bile ducts over time to catch strictures and complications early. 13,24
Symptoms
Itching, fatigue, and episodes of bile-duct infection (cholangitis) can occur and are treatable. Tell your team promptly. 25
Transplant
For advanced PSC, liver transplantation is the most effective treatment; many people live well for years before it is needed. 19–21
PSC can recur after transplant Advanced
PSC can come back in the transplanted liver (recurrent PSC) in a minority of people, which is why hepatology follow-up and monitoring continue lifelong after transplant. 19
Dominant bile-duct strictures are also watched carefully, since they can signal complications, including a small risk of bile-duct cancer, and are often managed endoscopically. 20,21